Archive for the ‘Diagnosis & Surgery’ Category

APRIL 21, 2009 E-MAIL SENT TO GROUP

Friday, June 25th, 2010

Hello.

Thank you for your e-mails and calls. I am saving responding to your e-mails for when I am at home more in the weeks to come. I am very happy to hear your news and updates about the slightest things in your lives. It allows me to feel close and connected to you until we can catch up on the phone.

As of today, I am FINALLY finished with all tests, exams and extra doctor visits. My Breast Cancer Stage is II. I am ready to start chemotherapy every 2 weeks on April 27th which will continue until the fall. Then there will be a break and then radiation starts. I am doing the “Dose-Dense…AC followed by T” treatment for those of you who know chemotherapy protocols.

After exhaustive research and exhausting doctor visits, I have chosen my oncologist. My surgeon’s favorite oncologist is Anne Moore at Weill-Cornell. I met with Dr. Moore and said that I would prefer if humanly possible to stay our in the suburbs for treatment given that visits to the doctor’s office are very frequent in between the every 2 week chemotherapy. She recommended Dr. Hollister at Greenwich Hospital. Greenwich, CT is about 15-20 minutes from my home. Dr. Hollister is a very good fit and that is where I will be treated. It is far easier for me than Manhattan to go to Greenwich especially since driving will often be forbidden. Greenwich allows friends to help and is a short taxi or train ride away. Greenwich Hospital has the added perk of looking like it is in the United States as opposed to a deeply poor and unhygienic country which is what all the other NY offices look like…..On top of all that, the chemo is administered in relative privacy instead of the forced group circles that most places offer.

On Saturday, I told Liam about the cancer and chemotherapy. That was the most difficult thing I have ever done in my life. I will be doing the best I can to minimize the damage to him and the twins as much as possible. I hope I can succeed in this and be able to take care of them during the treatment. I have already ordered one custom-made wig and am in the process of ordering several others as I hope that will ease the situation for the 3 of them as much as possible. Christine is doing research on make up and hats etc so I am in good hands.

I am in the process of joining Gilda’s Club (Gilda Radner which died of ovarian cancer in 1989…Gene Wilder, her widower, organized a nation-wide cancer support club in her honor).

I will also try to find a yoga class when I have time for ‘stress management’…in the meanwhile I rely of the good people in the pharmaceutical industry.

I don’t think there will be anything significant to report for quite a while. I will be in touch in a group e-mail when I am halfway through treatment in a few months.

In them meanwhile, please feel free to call or text as I can speak freely now…if I don’t respond it is because the international texting with Sprint rarely works so if you send me a text and I don’t respond within a day send me an e-mail and let me know you texted…I really want to work out the American phone system….so we can text…if it doesn’t work I will get another GSM Blackberry as Vic took mine…

Please keep your notes coming, too. They are a source of great comfort.

Signing off for now….Love, Babs

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APRIL 21, 2009– DR. VELTMANN AND I DISCUSS MY CARDIOGENOMIC PROFILE

Friday, June 25th, 2010

During surgical prep on March 24th, I took blood for the Cardio-Genomic profile. The results came back today which I reviewed with Joe Veltmann.

Joe adjusts my supplement schedule to account for the results.

There are a variety of SNPs but the ones which draw my eye are those which suggest reduced inability to methylate.

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APRIL 20, 2009– EMAILS FROM ME TO DR. VELTMANN AND BACK ABOUT IF I CAN TAKE THE CHEMOTHERAPY MEDICINES SUGGESTED

Friday, June 25th, 2010

Dr. Veltmann sends me the result of his analysis of my ability to process the chemotherapy medications based on my DNA. As I have no SNPs associated on the enzymes involved in the processing of ‘DOSE DENSE’ ACT Treatment, he clears me to proceed.

 Babs:

My pharmacogenomic analysis of the drugs (see attached) that you will be taking indicate that your SNP associated with CYP1B1 (see genomic results, Phase 1 DetoxGenomic) will not be a factor in your treatment.

 Since you have a functional CYP3A4, the primary cytochrome P450 enzyme in the detoxification of these chemotherapeutic agents, I am enclosing a list of drugs and/or botanicals that are known to inhibit this pathway (something we do not want while on the chemo drugs).  Please see the column listed as inhibitors and refrain from taking any of these while on chemo. Because your adrenal support contains naringenin I would suggest not taking this product during chemo since it has the potential to impede the removal of these chemo drugs from your system.

 If you need to discuss this, you can reach me on my cell phone (505.986.8835).

 Joe

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APRIL 16, 2009: E-MAIL SENT TO ‘BREAST CANCER ’ ONCOLOGIST DOCTOR MOORE

Friday, June 25th, 2010

Dear Dr. M,

My husband and I saw you several days ago. I was considering if there was a doctor located closer to my home where I could have chemotherapy and you referred me to Dickerman Hollister.

I met Dr. Hollister yesterday and was very relieved to meet him and enjoy his well run practice. I have decided to work with Dr. Hollister and keep in touch with you every few months.

Gratefully yours,

Babs

APRIL 16, 2009: E-MAIL RESPONSE FROM  DR MOORE

Babs–you are in such good hands…let me know if I can help. Dr. M

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APRIL 16, 2009 TELLING LIAM, MY OLDEST SON, ABOUT THE CANCER: MOST DIFFICULT DAY OF MY ENTIRE LIFE

Friday, June 25th, 2010

I have been thinking about how to tell Liam about the cancer since the first minute I heard it when he was in the car with me. I have read about how to do it, I have worried about it and have decided to talk to him in the car as per expert advice.

We were driving to his final first communion practice and I told him, “Liam, I went for a check up and the doctor found a lump in my breast. They had to take it off and now that it is gone I have to take some really strong medicine that is going to make my hair fall out. So before my hair starts to fall out, I am going to shave my head. The medicine is going to make me sick and tired a lot and I might be really crabby.”

“Oh, that’s going to be weird. How long will you not have hair for?”

“It should start to come back around Christmas time.”

“That’s a long time.”

“Yes. But I will wear wigs and it shouldn’t look too bad.”

“Okay.”

“Liam, I want you to know that the name of what I have is called Breast Cancer.”

“CANCER!!! CANCER!!” He is shouting at the top of his voice. “You have CANCER!!!!!.”

Yes, Liam I have Cancer. Where did you hear that word before?”

“I can’t tell you.”

“What do you mean you can’t tell me. You must tell me. That is how you get stomach aches.”

“Cancer is what Uncle Mickey has and Uncle Mickey is dying.”

“Oh Liam. I am sorry. I don’t have what Uncle Mickey has. Cancer is a word that means many things.. It is a word like infection. There are hundreds of different types of cancer just like there are hundreds of different infections. I don’t have what Uncle Mickey has and I am not going to die.”

He calmed down just a little bit. I had completely forgotten about Uncle Mickey. My brother-in-law the perpetually inappropriate and never ending talker had just spent Easter with us talking about Uncle Mickey’s impending death in great detail.

Uncle Mickey was his uncle but essentially filled the role of father for my brother-in-law and faithful companion to my mother. He was an ever present component of their house in ways that neither of his parents or my father were a big presence in our lives. My brother-in-law, Rob, was distraught about his impending death and spent all of Easter vacation talking about it. I had completely and totally forgotten about it as I did not associate myself at all with him…but Liam immediately made the connection.

I tell him that I will keep him up to date on every part of my treatment. He asks if he will get it because I have it. I say, “No. It is something that only women can get so you won’t ever have to worry about it.”

He knows all about genetic inheritance because he knows his asthma, sinus disease and reflux all come from his father. He knows all about medications because he takes so many and he knows about their side effects.

Well, at least it was out in the open. Liam went into the church while I parked the car. That was the most difficult thing I have ever done in my life and I find even writing about it to be quite painful.
I worry about being around for my children. I am so old in having them I really wonder if it was a mistake but to even think such a thing is to negate their existence. I worry about whether or not I will be able to stick around for another 30-40 years to take care of them and be a part of their lives.

I consider my body not my own but something that must be dedicated to being around to being part of their lives. Every doctor’s appointment, every surgery, every IV, doesn’t matter because it brings me one step closer to my goal of being part of their lives.

It was wrong to keep Liam in the dark these past several weeks. Of course, he wasn’t in the dark but was rather manifesting my own anxiety through his nightly attacks..but I couldn’t see how to tell him until I knew what was wrong and it took so long for the plan to be clear and all the tests to come back. But it was wrong and I still have not figured out how to protect them from my own feelings on the matter.

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APRIL 13, 2009 E-MAIL SENT TO GROUP: WHY MUST I HAVE CHEMOTHERAPY?

Friday, June 25th, 2010

Hello. A belated Happy Easter and Passover to all.

Here is an update on my status.

First, regarding my stress level, I am very happy to announce to all of you that my friend, Jack , has miraculously been released from captivity in Asia.
If evidence is required of the ability of people to overcome bad things, I can’t think of a better story.

After 2 ½ weeks of complications, I was released from the care of my surgeon today and scheduled to see her 6 months from now…that is very good news.

I have completed my scans today also which allow the oncologist to conclusively ‘stage’ me. The scans show my body to be free of cancer and only a few things which must be monitored.

People have asked if the scans show me ‘clean of cancer’ why must I have chemotherapy and radiation?

I must have chemotherapy because of the following strong reasons
1) My tumor was over 2 cm.
2) My cancer is the most aggressive there is
3) It has already spread beyond the initial tumor to the lymph nodes and there is…
4) Extensive Lymphatic Invasion (meaning it spread to my lymph nodes)
5) Women with my type of cancer and profile respond well to chemotherapy

There is a high probability that a cancer such as mine has spread microscopically throughout my body all of which would be undetected by any tests available. Therefore, I must have chemotherapy to decrease the probability of reoccurrence.

I must have radiation because it is the standard protocol to the tumor sites after surgery.

I still have not chosen an oncologist that I feel happy about but have more appointments to go to. There has been significant delay to my ability to see doctors because of the surgical complications. Chemotherapy will start no later than April 27th with one of the doctors…

I still have not told Liam because I am a coward but will do so this week. Please feel free to call whenever you like although I may not be able or willing to discuss my medical situation but would be very happy to hear from you.

Thank you for your e-mails, cards and prayers.

Love,

Babs

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APRIL 13, 2009: I HAVE A TOTAL BODY BONE SCAN WITH RADIOACTIVE DYE

Thursday, June 24th, 2010

More fasting in order to be shot up with radioactive dye in order to find out if the cancer has spread.

Again completely and totally surreal. This time I was more prepared and it was less stressful. There is no way to tell which will be more stressful in advance, the hospital environment or the private clinic environment. Each one of these offices that makes prognoses about death have their own little environment where they can add or relieve stress.

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APRIL 11, 2009: SUMMARY OF JOE VELTMANN SUPPLEMENT SCHEDULE TO REPAIR DNA-CONT

Thursday, June 24th, 2010

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APRIL 11, 2009: SUMMARY OF JOE VELTMANN SUPPLEMENT SCHEDULE TO REPAIR DNA

Thursday, June 24th, 2010




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APRIL 10, 2009 (WRITTEN JAN 18, 2010) DR. VELTMANN EXPLAINS THE BLOOD TYPE DIET

Thursday, June 24th, 2010

I finally prick my finger to find out what Blood Type I am. It is Blood Type B. I have learned about alkaline diets preventing cancer from a variety of sources including Dr. Veltmann. I have not made much of an attempt to follow it except I stopped drinking coffee the day of the 2nd surgery and I stopped drinking Diet Coke the day of the 3rd surgery.

I prepare in my head for a combination of the Alkaline Diet and Blood Type B Diet.

Joe Veltmann sends me information about BLOOD TYPE B Diet. It is not too arduous but it does mean stopping many of my most frequently eaten foods like chicken, avocado, crab, corn, soy and others.

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