I finally saw Dr Oratz today. I had heard about her since the beginning but never gone to her. She was very thorough, put everything in the computer even though it took longer than making scribbles. She was half an hour late and apologized for it. Her office feels more like a chichi gyny office than an oncology place. No sick patients on view, no sign of an infusion room. She disputed Boyd’s stopping Vitamin D, she wants to send the tumor for oncotype testing in order to make a more informed decision about my hormonal treatment. She said that people talking about Aromatase Ihibitors after 2 years instead of 5 years was the result of pharmaceutical company propaganda. She had zero interest in the estrogen metabolism work. She said that it was laboratory work and until it had been in a clinical trial was of no relevance to her whatsoever. She discussed the disciline of losing weight extensively and she was very thin and tiny, I felt like a gross pig standing next to her. She meseasured me and said I was almost 58 inches which means I am shrinking.
She is the first oncologist to insist on the genomic testing of the tumor since my pathology report shows a mixed bag. She told me to go vegan and that all the protein in the world wasn’t going to help my immune system. She said I received much more chemo than normal. And that we have absolutely no way of knowing why I did not metabolize chemo normally. She told me to do yoga becuz she has a very bad back. She said it would change my metabolism. She agrees with a low glycemic vegetarian diet. We discussed bisphosphonates at length and it is time for me to figure it out. She said that the bisphosphnates were as important as the tamoxifen. No way to know if insurance will pay for the oncotype testing as she is using it in a way that has only been recommended for less than a year; in order to fine-tune hormonal therapy treatment.
We discussed bisphosphonates again. She said it was just as important as the hormonal therapy and reduced risk by as much as 20%. I don’t know what study she is looking at and must ask her for it.
It is all a bit discouraging as I seek a doctor to oversee my estrogen metabolism work. Dr Boyd was interested but didn’t respond to any of my emails at all and I imagine requires follow up. I haven’t even started and I am exhausted. It is disconcerting to be the one teaching the oncologists but I guess that is how it is with medicine. First the lab work and the studies, then the clinical trials and then the doctors…so they are the last ones to know in the chain of medical information?